The Voice of Lupus Foundation

A Pillar of Strength

A VICTOR OF LUPUS

vlf victor of lupus

I spent a long time trying to find the right start to this blog.

Today I chose to start with my testimony that occurred three weeks ago. It had been almost two years I opted to stop taking all my medication that was used to control my lupus and manage my recurring flares.

I also discharged myself from the Rheumatology Clinic at the San Fernando General Hospital after doctors wanted to start me on Cyclophosphamide- a chemotherapy drug back in 2011.

It was there I decided to cease all treatments.

Before the story unfolds further, let me take you back a bit.

I had been suffering for several years, trying to adjust to a life living with Systemic Lupus.

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NO TO CHEMO!

Giving up just isn’t an option- I kept repeating this over and over to myself as I sat in Dr. Poon King’s office two weeks ago at the San Fernando General Hospital after being told that I needed to start chemotherapy.

I have been “seeing” Dr. Poon King and Dr. Dyaanand to manage my lupus ever since I was diagnosed. Both are consultant rheumatologists attached to the hospital.  For months I have been using prednisolone (an oral steroid) and cellcept, both immune suppressant drugs to lessen my symptoms of joint pain, fever, skin rashes including hives and other compilations I have been experiencing.

Unfortunately all the meds did was just double my waist and hip sizes. I have gained so much weight since I was put on this medication; it is quite frightening to know how one tiny pill can have such “BIG” effects.

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CONQUEROR!


Someone once said it is hard to accept that the past cannot be changed. You can’t go back and manipulate things to the way you wanted them to happen. But you can certainly change the future. That’s the beautiful thing about life….yes you will make mistakes and yes, you will have bad days-but as long as you let the past go, things will get better. This is my story.

My name is Reeanna Harrilal, I am 29-years-old and I am just like you. Perhaps the only difference is the journey I took to finding who I really am. For me it is embracing the good, the bad and the ugly.

To be completely honest, I spent countless hours on my laptop striving for a brilliant start to this article. Nonetheless, I sincerely hope my story will encourage and help those who have watched their lives fall apart…not knowing how to pick up the pieces…I too have been there.

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